Friday was another MRI day and as I have said many times on here, I hate that week leading up to it. It seems that when one MRI is done, the excitement and relief that we feel is wonderful. However, with that being said, you realize that the clock starts ticking again toward that next round. I don't have to circle the date to remember when the next one will occur. My memory is fading at times, but I remember that without fail.
I also get reminded from so many folks who follow along on his journey. It seems when they don't read or hear something the phone or e-mail starts to crank up. Through our this whole ordeal we have been very open and honest with our postings. I certainly don't want anyone to think we might be hiding something or not letting you in on any news. If we don't happen to say anything, please feel free to ask. We will share any news that we have and appreciate your interest. Since a lot of the treatment has stopped, life has been rather boring.
We seem to like boring right now.
So again it is with great happiness that we can report that Andrew's latest MRI was again stable. He is getting so much bigger and with his continued medications he seems to be doing remarkably well. He now has a full head of hair and he is very proud of that. He is improving in both vocabulary and motor skills. The special schooling he is receiving has been a huge help. I am thankful that their school corporation has this program in place. He is enjoying the summr and being able to play outside in his swimming pool and on his swing set. My daughter-in-law has finally been able to go back to gardening (she loves flowers) and he is now "helping" her with the chores.
I again say thank you all for following along on Andrew's journey. We are all very humbled by your outpouring of love and prayers for the little guy you haven't even met. As I have mentioned before, I can't possibly live long enough to thank everyone in person who has been with us through this journey. I try to post on non racing nights so as not to barge in on the purpose of this board. Your friendship and encouragement have meant so much to me and my family. We continue to ask that you keep all of the little ones suffering from AT/RT and their families in your thoughts and prayers. We are the lucky ones right now and we realize that can change at any time. We continue to Dream, Hope and Believe. Hope to see you at the races.
