Well the roller coaster ride continues. Last Thursday was suppose to be the next MRI and I was hoping to post some positive results. Anesthesia didn't feel comfortable intubating Andrew for sedation because of the recent questionable findings in his chest X-ray and it had to be rescheduled. That being said, today they did another chest X-ray and also were starting the next chemo round which is 5 days of outpatient treatment. His next MRI was rescheduled for July 24th the day after his appointment with the Infectious Disease specialist and Pulmonary. It seems that the clock was reset and the ticking has started over. I hate this since you get yourself prepared to hear results and then nothing.:headbang

Andrew had a comprehensive occupational therapy evalaution last week and they are planning a weekly therapy to address a range of oral/motor issues. We are hopeful that this treatment will improve his swallow and in the long term, diminish his chances for aspirating and contracting pneumonia or sustaining other lung damage.

They will also be seeking a speech/language evaluation as in the next 2-3 years they expect Andrew will experience hearing loss as a result of the chemo drugs and radiation. This would boost his speech and language skills prior to any substantial hearing loss.

Andrew also saw a Pediatric Neurologist and a Physiatrist (not a Phychiatrist!) last week and they are recommending ankle/foot orthotics for him to help correct is gait. Funny part about this is that they don't feel his walking has anything to do with the brain tumor. Even with cancer, other things still go on with a 2 year old boy! Go figure.:doh:

I again thank everyone for sending thoughts, messages and especially prayers as Andrew has hit another rough patch in the road. Thanks for following along on his journey as my family appreciates your interest.